From 1 July 2022, Clinical Commissioning Groups (CCGs) will be dissolved, and Integrated Care Boards (ICBs) will take over the responsibility for NHS functions and budgets. We will become part of NHS Humber and North Yorkshire ICB. You can continue to use this website to find the information you need, which remains relevant for the Hull area.

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NHS Hull Clinical Commissioning Group (CCG) is seeking the views of people with Down’s Syndrome, their families and carers.

The CCG is working with health and social care organisations in Hull to develop a pathway for people living with Down’s Syndrome.

When completed the pathway aims to provide families and staff with the information they need to get the best from the health service.

The pathway covers specialist services for Down’s Syndrome, such as screening, check-ups and treatment; and also gives information about support and mainstream services.

We are holding an experience based design session for service users, parents and carers on:

Wednesday, 13 September at The Holiday Inn Express, Ferensway, Hull

Click here for a map to the venue

We have a number of sessions:

Morning session 10:00am – 12:00pm

Afternoon session 1:00pm – 3:00pm

Evening Session 6:00pm – 8:00pm

If you have views and experiences to share then we would like to hear from you. The event is free. You only need to attend 1 session.

Click here to register an interest as places are limited

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