The Humber Children’s Partnership is working collectively with the four Clinical Commissioning Groups (CCGs) and Local Authorities (Hull, East Riding of Yorkshire, North East Lincolnshire and North Lincolnshire), and the providers of health and care services with a focus on improving children’s services across the Humber region. This work aims to improve the experiences and outcomes for children and young people and their families.
One of the projects is focusing on services that provide care and support to children and young people with Palliative and End of Life Care (PEoLC) needs and their families and ensuring that across the Humber we achieve the requirements of the NHS Long Term Plan, the national PEoLC Strategy (expected October 2021) and the regional Yorkshire and Humber Children’s Palliative Care Network (YHPCN) Strategy.
A series of seven workshops are being held over the next six months that will focus on the needs of children, young people and their families based on their care journey from the point of diagnosis to bereavement support. As part of these sessions, we would very much like to hear your lived experience and views. This is essential to help us understand what is working well and is well provided for, as well as those experiences where things haven’t gone so well, or there have been gaps or difficulties in accessing or delivering the care and support that is needed.