Hull Dementia Collaborative

Living with Dementia in Hull booklet

The Living with Dementia in Hull booklet gives a simple breakdown of local dementia support services and is a great source of information for people with dementia, their families and carers. Click here to read the booklet.

What is the dementia collaborative?

The Dementia Collaborative is led by NHS Hull CCG and Hull City Council and chaired by Dr A. Symes – GP Lead for Dementia.

The collaborative is a group of organisations from across Hull who work with people living with dementia as well as their carers. The membership includes health and social care organisations, the voluntary sector and people living with dementia and their carers.

The collaborative meets on a regular basis and work to ensure that the best possible care is provided by all organisations to those living with dementia.


Collaborative members

The Dementia Collaborative is made up of the following organisations:

• NHS Hull Clinical Commissioning Group
• Hull City Council
• Butterflies Memory Loss Support Group
• Hull Dementia Action Alliance
• Dove House Hospice
• Alzheimer’s Society
• Hull & East Yorkshire Hospitals NHS Trust
• Humber NHS Foundation Trust
• NHS England – Yorkshire & Humber Clinical Network
• City Health Care Partnership CIC
• Dementia Academy


Voice & Influence Forum

The Voice & Influence forum is a group where people living with dementia and their carers meet bi-monthly to discuss topics that matter most for them. This can include improving information on advice and support.

It also discusses the collaborative’s work priorities and lets people have their say on these in order to improve services across the city.

To find out more please contact butterfliesmlsg@yahoo.co.uk

Become a Dementia Friend

People with dementia get by with a little help from their friends. And anybody can become a Dementia Friend. It’s just about understanding a bit more about dementia and the small things you can do to help people with the condition.

People with dementia want to carry on going about their daily lives and feeling included in their local community, but they sometimes need a helping hand to do so. Dementia Friends learn a little bit about what it’s like to live with dementia and turns that understanding into action. This could be helping someone find the right bus or being patient in a till queue if someone with dementia is taking longer to pay. Every action counts.

Being a Dementia Friend isn’t about volunteering or fundraising (though you can do that too if you want).

Link to :  https://www.dementiafriends.org.uk/register-digital-friend

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